Saturday, April 3, 2021

Hurry Up and Wait Update

Not a lot of updates but here is where we are at:

  • Jacksonville: There is a possible clinical trial. It is an antibody treatment. If I qualify, it would be an intense weekly treatment. The first two treatments would be given in patient so I can be observed for side effects. The next few after that would be in clinic for the infusion for about six to seven hours for observation. 
  • Boston: The doctor is waiting to hear from the clinical trial team, which they had not done before our meeting this past Wednesday. We will hopefully hear something early next week.
  • Georgia: We are headed to a clinic to see what options they might have. 

After we have responses from everyone, we will have Boston and Jacksonville weigh in and then we can make a decision. We are in the hurry up and wait mode. 

In other news, I have sold my car. I have not driven since last June. My perfectly good car was just sitting in the driveway and I felt that there was someone out there who could be driving it.


While selling the car was super smooth, turning in the tag was not! We tried to turn in the tag the next day but apparently we needed an appointment. So we have to wait until next week to turn it in. Nothing is easy.

For tonight . . . I'm just sayin' XOXO

1 comment:

  1. Happy Easter! Looking forward to you getting some good reports from your clinical team in the week ahead and that the trip to Georgia provides some good options! Love You!

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