As I am living with the impacts of the cancer, I am having to figure out how to cope with things. This is probably the most frustrating thing about my situation.
The first situation I had to figure out was what to do with the flag and cat gift I received for Valentines Day. I didn’t trust the lawn
people not to run it over and I wanted to be able to see it. So I thought about how to make it work on the porch. I got a large pot and some
decorative stones and went to work. I had to order to two bags of stones but I got it done. One project completed in four months.
Next thing I needed to figure out was where to put all of the kitchen items once they came out of the pod. My original thought was on a bookcase in the garage but I ended up using the bookcase in one of my guest rooms. Then I went back and forth on what to do but I have finally decided to put shelving in my garage. I do what I do best and order some shelves online. They were suppose to be here last Wednesday. On Tuesday, I went to do something out front, rounded the corner to my pathway being blocked by three large boxes. I ended up opening the garage and slowly pulling them in.
I was back to figuring how to shower in this house. The shower head holder I had ordered kept falling down. I ordered a bigger one that I thought would hold the shower head better and that didn't work any better. It kept falling down, which made a huge noise and scared the four of us. Last week, I decided to only put it up while showering and then pulling it down afterwards. It worked! Two weeks in a row, I have been able to shower (with hot water) like a normal person.
Every week I figure out one more thing to make my life a little easier. I have put a stool in the kitchen and the bathroom so I can rest when I run out of breath. When I get groceries, if it is more than one two bags, I use a pull cart to get the food from the front door to the kitchen. I have figured out the best place to put my IV poll during hydration therapy. My side table is well stocked with all of the office and medical supplies that I need in a day with my small desk that has a stack of books ready to be read.
While I am getting my physical space situation, I am working on figuring out the roller coaster my body is putting me on. I am getting a better grasp of the adrenal gland insufficiency and how it makes me feel when I am stressed. It is funny how sometimes my body feels the stress before I mentally realize that I am stressed. I do find that the Prednisone does make my fuse a little shorter than it used to be. For example, my neighbor has decided to hold and feed the ducks. I had been watching from afar. Then this weekend, the little boy tried to pet the duck and the duck went after him. The boy ran and screamed. Then the mom went after the duck. She pinned it down and then when it got lose and tried to bit her, she got the hose. When she looked at me and laughed at the situation, I told her that is what happens when you feed and handle the ducks. She didn't like my opinion and called me a name. We shared words, the duck got away, and every one went back inside. I have no patience for individuals who mess with wildlife. Leave the poor duck alone and it will not try to bit you. I find my patience with poor customer service is getting less and less. My tolerance for individuals who fail to do their job is almost at zero. I am trying a number of de-stressing techniques to keep my body from reacting. I am also evaluating my need to always want to make things better. I think that is one of my better qualities but I need to find a way to do with that does require additional cortisol. LOL!
This week I meet with my endocrinologist so hopefully she will have some good information about how to mitigate the side effects of the adrenal gland insufficiency and how to identify when I am in an adrenal crisis. Right now, I think sometimes I get into a crisis without realizing it and then it takes a little bit of time to come out it, meanwhile I feel terrible. I am trying really hard to have more good days then bad days.
Hopefully, my garage "project" will end soon. I cannot believe that it is taking so long for the restoration company to complete the work so I can get my stuff out of the pod and back into the garage, where I have access to it. Meanwhile, me and the insurance company are disagreeing about their valuation of my damaged property, especially my books that they want to depreciate 90%. I submitted my appeal last night so fingers cross my case was convincing that I need more than $0.90 to replace a brand new hardback book.
For tonight . . . I'm just sayin' XOXO
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