Chemo #5

I am sorry it has taken me so long to update to my blog. I will break these into a few posts but you will see that for the past ten days, I have been busy.

My grandpa and uncle came to visit prior to chemo. It is always great to spend time with my grandpa. It was also my uncle's birthday so we celebrated with dinner and cupcakes.

On the way to meet up with my uncle, grandpa, and me, my mom got a phone call from a very close family friend in Virginia. She was hesitant to call but had received bad news and wanted to check on us. My mom called her back and she shared that one of my grandpa's social groups, posted that I had passed away. She was so upset. My mom assured her that I was very much alive! That evening, mom and I looked online and sure enough....

I have now reached celebrity status with false accounts of my passing. We laughed so hard for hours. I wasn't sure if I was more upset that they had wrongly posted my passing or that three people gave the post a thumbs up. I was told not to take it personally because they were sending prayers our way but for future reference, a sad face emoji would be more appropriate. We assumed that when my grandpa told his friends how sick I was and then headed to Florida, people made some assumptions. We have set the record straight.

If you look closely, you will see a few new bracelets that have been added a Wonder Woman ring. I feel that these help me channel all of the thoughts and prayers coming from my family and friends as well as my superhero strength. You will also notice a new bag for treatments, with a matching mask.

Just showing my ring....I promise!

We still have had no luck finding a clinical trial. We have not given up but apparently the rarity of this disease continues to challenge us at every step. I know I like a good challenge but I am ready for something easy. Since it appears that I will have chemo for awhile, I have decided it is time to get a port. I had something similar as a child and it truly does make things easier.

Chemo #5 went well. Although, we had to use a vein in my wrist for chemo. 

Unfortunately, I am at the point in my treatment where I think chemo takes a little more out of me each time. Hence while I did not blog the weekend after chemo, I slept. I look at sleeping as the times my human alter ego takes over....I cannot be a superhero twenty-four seven. 

For tonight . . . I'm just sayin' XOXO